Category: Illness

27th August 2022: Wait till I’m alright

I have hit the erase button more times than I can count just to find the words to write here.

I suppose, sometimes we have those days where we can’t quite express how we feel, yet we know we should at least try. How are we supposed to know what’s what if we sit with the heavy weight of emptiness and loss? Sometimes we just need a little bit of time to check out with others and check in with ourselves. That’s how it’s felt for me recently. I’ve been distant from others, intentionally.

There have been so many opportunities for reflection; where my thoughts have entangled in hopes, dreams and reality. I’ve been holding onto hopes and dreams for so long, that I often lose sight of what’s in front of me. I find myself drifting into a realm of make-believe, my mind wandering endlessly into ‘what ifs’ and fantasies. I confuse myself about what’s real and what’s not, and my heart aches with the feelings that come and go.

“Life is not linear, it is organic. We create our lives symbiotically as we explore our talents in relation to the circumstances the help create for us”.

Ken Robinson

I’m always going to be a work-in-progress. I have my flaws. Sometimes life challenges us that little bit more when we feel powerful enough to face adversity. People believe in me; much greater than I believe in myself. I’d hoped that by completing my degree, I’d feel somewhat whole, or at least present with myself. Instead, I feel detached, longing for a place to feel worthy and valued. I feel isolated and powerless, haunted by suicidal ideation and self-harm.

Of course, the reality is that I am valued and worthy, but my inner critic overpowers the positives and throws me into the deep end of depression. The attempt to survive is fixed to trauma and as I fight my way through the darkness, despite the unhealthy coping mechanisms I’m so severely latched onto, I desperately seek a glimmer of hope.

The reality drifts away, whilst my mind holds onto hope as a way of enabling me to break what feels like an endless cycle of perfectionistic self-torture. I’ve been beating myself up for far too long, and it’s unnecessary. I’m finding little breakthroughs which push me that little closer to happiness. I’ve righted my wrongs, and I’ve forced myself to get up and fight. Letting the setbacks knock me down, only shows me that I’m not ready for some of the roles I’m so passionate about fulfilling. I tell myself that’s okay and instead, I work on my potential, and learn from others. I find the strength to believe in myself and see what others see so much in me. Over the past few weeks, people have been so incredibly kind, and comments such as, ‘very inspiring’, ‘amazing work practice’, ‘incredible’ and ‘gratitude for sharing life experiences’ empower me to thrive. I feel validated in supporting others, which in turn, helps validate who I am and how I react to setbacks, whilst learning to accept myself.

I am slowly untangling the thoughts and feelings and finding myself again. It’s not been easy, but allowing myself to feel the emotions has only given me the strength to persevere and be brave. Admitting I need long-term support has been one step in the right direction, and following an IAPT assessment ending in a referral to CMHT, I wait patiently for an assessment, which will no doubt only end in rejection. The system is as broken as I am. Still, hold onto that glimmer of hope.

Focus on the positives. There’s so much to be proud about, and so much to look forward to:
– A surprise holiday in October (I still don’t know where we’re going!)
– A big holiday to America next year (This is insane and I still can’t quite believe it).
– Theatre shows and concerts (Still planned from pre-pandemic).
– Graduation (A time to celebrate a huge achievement!)
– Returning to university after accepting an MSc, starting in September.
– Being challenged within my job and embracing the reward of helping others.

So, despite my setbacks and torturous mind, I’ll end with a quote from the inspiring and wise Jung:

” I am not what happened to me, I am what I choose to become”.

Carl Jung
Image: OCD Doodles on Instagram at @ocddoodles

If you’ve read this blog and you like what I’m doing, please consider supporting me by donating a ‘coffee’, a donation to contribute to my work, time and materials which go into making this wonderful site. I’ll be adding guest posts and reviewing resources for mental health and chronic illness, so you can read before you buy. By donating, you also have the amazing opportunity to be featured on my Ko-Fi Page of Gratitude, where you can advertise your own website or blog. Don’t have a blog? No problem, I’ll add in your name, because I want you to know how appreciated you are!

Your support will go towards materials to help me make not only this space bigger and better. Thank you!

17th August 2020: Diagnosed.

Photo of Erica with an overlay of letter from ASD assessment

This is a backdated post to coincide with the original post across my social media platforms, I decided to share here to continue the honesty and journal the update here too:

I’ve thought long and hard about sharing this post and why I need to share.

At almost 33, I have a diagnosis which I’m still trying to grasp. And, at almost 33, I wonder if people think, “What difference is it going to make? You’re an adult now. You’ve got this far without this diagnosis…”
…………….. And maybe they’re right – What difference will it make?

This takes me back to one of the earliest lectures in my first year at university, challenged by the thoughts of others. Some people question the authenticity of a diagnosis: “It’s fashionable to say you have anxiety or depression…” I hear where they are coming from – After-all, clothing companies often inappropriately use mental illness for fashion statements. Labels become just that. Labels.

However, my argument is that having an actual diagnostic assessment to support a diagnosis can mean a great deal to the individual. Especially when it can offer a huge range of support from services such as CMHT and social services, which you may not be able to receive without it.

We know that in the past decade, there has been a rise in mental health issues (mainly due to social media) – Are we also seeing an increase because people are now more willing to accept it, or are the professionals handing out these “labels” like they’re Smarties?

Two tubes of retro cardboard Nestle Smarties (pngkey.com)

As said above, having a diagnosis can mean the world to an individual.
So surely, it is better to empathise with them, than judge them for seeking answers?

Let’s speak personally: It took years to get support after various diagnosis’, but these diagnosis’ allowed me to go through specific therapeutic interventions. If I didn’t go through the assessments, it is highly unlikely that I would not have been given the opportunity to receive this particular treatment.

Whilst Autism Spectrum Disorder (ASD) and mental health are two separate entities, there can be some overlap in certain conditions.

ASD runs in my family, and as I got older I could see similarities between us all. So when I’ve had people question why I wanted the assessment, was it because I believed I am also autistic? Honestly, I had no idea. It was 50% Yes and 50% No.

I felt it could explain why some therapeutic interventions worked, whereas others didn’t. It would also explain why I have been misunderstood my entire life, or that I can sometimes come across as being “challenging” or “difficult”. I wanted to find out why social situations see me in various states of mind, where my behaviour alters depending on the situation. People say they don’t notice, but I feel a change in my anxiety. I guess, this is where I have learnt to mask – and the burnout is real!I didn’t know what would come of the ASD assessment, and admittedly I was anxious and afraid. It could explain a lot, but it could also make me realise that this is never going to go away.

The outcome of the assessment was: Diagnosed with Autism. I’m still trying to figure out what this means for me, and it has been suggested I have counselling specifically addressing the new diagnosis. It is co-morbid with my mental illness, meaning they go hand-in-hand with one another.

*People are often misdiagnosed with ASD or a personality disorder (in this case BPD… And yes, you can have both!)*

As ASD can be hereditary, I was most likely born with it. Yet, even the biological and environmental factors can contribute to mental illness in developing a personality disorder, as some people are more susceptible and sensitive to life events and this affects the chemicals and wiring in the brain which manifest into distorted thinking (This is why it is possible to have both autism and a personality disorder). I’m glad in some way to have a definitive answer, but I’m also struggling to adapt to the news that this *is* me.

I may be autistic and I may have complex mental illness, but there is much more to who I am. I’m just hoping that now, I may be understood, and have support in place to help me when I’m having an episode or meltdown, rather than feeling like I’m being judged and misunderstood all the time.

This is a whole new chapter in my life, and I wanted to share this with you because it is important to be true to yourself, and I want to share this chapter with you.

Image designed by Erica with a quote from Dr Temple Grandin, an autism spokesperson, who is also a Professor in Animal Behaviour.

Here are a couple of links to explain more about what Autism is, and although there are more out there, please choose:
NHS – What is Autism?
National Autistic Society

Not everyone is a fan of ‘memes’, but I believe they can be helpful for self-expression. Particularly, if they can be done with good taste, humour and at no expense of at hurting someone.

I found these memes via autism sites on social media, eg, Instagram, and I connect with these. I am sure many people will be able to identify with them in some way or another. I just find these amusing as they are things I do a lot of, and weirdly, I’m okay about it. That’s me!

If you’ve read this blog and you like what I’m doing, please consider supporting me by donating a ‘coffee’, a donation to contribute to my work, time and materials which go into making this wonderful site. I’ll be adding guest posts and reviewing resources for mental health and chronic illness, so you can read before you buy. By donating, you also have the amazing opportunity to be featured on my Ko-Fi Page of Gratitude, where you can advertise your own website or blog. Don’t have a blog? No problem, I’ll add in your name, because I want you to know how appreciated you are!

Your support will go towards materials to help me make not only this space bigger and better. Thank you!